+ Reply to Thread
Results 1 to 3 of 3

Thread: Finally! My Own vWD Family!

  1. 11-21-2008 #1
    DeniseMN
    DeniseMN is offline Junior Member
    Join Date
    Nov 2008
    Posts
    2

    Smile Finally! My Own vWD Family!

    Thank you Jessica for our wonderful chat in Denver! I have your pamphlet for this site and couldn’t wait to get online and continue to expand my vWD family!

    The CSL Behring vWD session was the best session that I had attended. I am always amazed at how similar so many of our experiences are. I am excited to be on this site and will admit that this is the very first online support group that I have joined!

    I have a tough week coming up with my Son Nickolas having his surgery on Monday the 24th... and only hope that he doesnt experience excessive post op bleeding.and that we are sent home either on Friday... which would be the earliest he would be released.

    We received a 3rd diagnosis for Nick just this week at his pre-op appt with his Hematologist. We, of course, know that he has vWD Type2a, a platelet disorder... and now he has a Lupus Inhibitor. A glorified term that means he has a higher propensity to form blood clots in his veins! It is more of a thrombosis issue... what next? His Doc pulled 7 more lab tests... because he reacts so differently than other vWD males his age (17) with the same vWD diagnosis to his factor treatments, platelet transfusions, Amicar and even Stimate.

    But, all in all... with his surgery coming up... he is in good spirits. I personally think he is happy about missing school next week. But alas, he was reminded that he wasn’t having brain surgery... so he will STILL have to keep his homework up to date.

    I look forward to chatting and posting and can’t wait to look up all the information on this site!

    Denise
    Reply With Quote Reply With Quote  
  2. 11-21-2008 #2
    dontpanic's Avatar
    dontpanic
    dontpanic is offline Site Admin
    Join Date
    Sep 2008
    Location
    MS
    Posts
    6

    Talking Re: Finally! My Own vWD Family!

    Hi Denise, glad you joined us.

    I hope that all goes well with your son's surgery...our son's is coming shortly I'm sure. The consultation is in two weeks and we're hoping to move things along quickly (yeah, right) so he can get back to normal.

    Be sure to visit us often and let us know how things are progressing.
    Don't Panic!

    Be sure to read the site rules here.

    All content found on the You, Me & vWD site is for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the You, Me & vWD site. If you think you may have a medical emergency, call your doctor and/or 911 immediately!
    Reply With Quote Reply With Quote  
  3. 11-25-2008 #3
    Chris's Avatar
    Chris
    Chris is offline Site Leader
    Send a message via AIM to Chris
    Join Date
    Sep 2008
    Location
    Hernando, MS
    Posts
    37
    Blog Entries
    8

    Default Re: Finally! My Own vWD Family!

    Denise,

    I'm so glad you met Jessica. Isn't she great?

    How did your son's surgery go? You've all been in my prayers!

    Chris
    Reply With Quote Reply With Quote  
+ Reply to Thread
« Previous Thread | Next Thread »

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

Forum Rules