Jessica

My son has been dealing with what I thought was a muscle bleed for a little over a week now. Turns out that whatever bleeding may have occurred is now resolved (thanks to infusing the living crap out of him), but the pain from the bleed was at some point replaced with the pain of keeping the muscle immobilized for too long. Who knew you could have such severe pain from keeping an injury still for too long? Anyways, I took him into the HTC last week, and on our way out after finishing up, my son's hematologist said that Jeremy seems "kinda down" about the whole thing, to which I selfish replied, "I'm kinda down about it too!" On my way home, I started thinking more about what she said, and realized that while he is obviously frustrated with the pain he is dealing with, he's also having a hard time mentally and emotionally with the situation. He will be 13 years old this May, and I think he has reached the point where this "it's for the rest of my life" aspect of his VWD is really getting to him. It's hard for me to imagine what he is going through - I've never had persistent pain, other than a kidney stone that took 2 1/2 weeks to pass a year ago. All he wants is for the pain to go away, and the frustrating thing for me is that no matter what I've done so far, I haven't been able to do much to help him. It's hard to watch your child hobble around like a little old man and whimper everytime he moves. I just want to make it better.